Myth vs. Fact: Debunking Common Misconceptions About NF

When people hear about a rare disease like Neurofibromatosis, they often don’t know what it really means. Unfortunately, that can lead to misunderstandings, fear, and stigma. Today, let’s clear the air by breaking down the most common myths about NF and replacing them with the facts.

❌ Myth #1: NF is contagious.

✅ Fact: NF is a genetic condition, not an infection. You can’t “catch” it by touching or being around someone with NF.

❌ Myth #2: Everyone with NF looks the same.

✅ Fact: NF affects everyone differently. Some people have visible symptoms like skin spots or bumps, while others have internal tumors that aren’t visible at all. Two people with NF might have completely different experiences.

❌ Myth #3: NF is just a skin condition.

✅ Fact: While skin symptoms are common in NF1, the condition can also affect the nervous system, hearing, vision, and even learning abilities.

❌ Myth #4: NF always leads to cancer.

✅ Fact: Most NF tumors are benign (non-cancerous). However, a small percentage can become cancerous, which is why regular monitoring by doctors is important.

❌ Myth #5: People with NF can’t live normal lives.

✅ Fact: Many people with NF live full, active lives. With medical care, support, and awareness, they can pursue careers, education, and dreams like anyone else.

Why Busting Myths Matters Misinformation can make people with NF feel isolated or misunderstood. By sharing the truth, we build empathy and encourage more people to support research and advocacy.

What you can do:

• Share this post with your friends to spread awareness

• Follow NFSA for more NF facts

Join NF Awareness Month in May and wear blue & green to show support