A NIGHT AT THE BOSTON MUSEUM OF SCIENCE
In April 2026, the Neurofibromatosis Student Alliance exhibited at Rare New England’s “Advancing Rare Together” event at Boston’s Museum of Science. Our exhibit, “Speak Up for Rare,” showed how students can turn lived experience with neurofibromatosis into awareness, community, and policy advocacy. NFSA exists because advocacy should not require a title, years of experience, or permission to begin.
Connecting with advocates and attendees to share the mission behind the NF Student Alliance.
Walking visitors through our "Speak Up for Rare" display and student advocacy initiatives.
Welcoming guests and building community connections during the "Advancing Rare Together" event.
Discussing actionable ways students can drive policy change and rare disease awareness.