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Comparing NF to Other Rare Diseases
Neurofibromatosis is just one of over 7,000 rare diseases . While each is unique, they share similar challenges: delayed diagnosis,...
Samaira Qureshi
Sep 11 min read
NF Around the World: A Global Perspective
Neurofibromatosis affects people everywhere—but access to care, research, and support differs dramatically depending on where you live....
Samaira Qureshi
Sep 11 min read
NF & Mental Health: The Invisible Battle
When people think of Neurofibromatosis, they often picture tumors and physical symptoms. But there’s another side to NF that’s just as...
Samaira Qureshi
Sep 11 min read
NF Research Updates: Hope Through Science
For decades, families affected by Neurofibromatosis (NF) have been told there’s no cure. But today, science is changing that story....
Samaira Qureshi
Sep 12 min read
How to Get Involved: Supporting the NF Community
When you first hear about Neurofibromatosis, you might wonder, “How can I help?” The truth is, you don’t have to be a scientist or...
Samaira Qureshi
Sep 11 min read
Myth vs. Fact: Debunking Common Misconceptions About NF
When people hear about a rare disease like Neurofibromatosis, they often don’t know what it really means. Unfortunately, that can lead to...
Samaira Qureshi
Sep 12 min read
What is Neurofibromatosis? Types Symptoms and Hope for the Future
Imagine waking up one day to find tiny spots on your skin that you didn’t notice before. Or gradually losing hearing in one ear without...
Samaira Qureshi
Sep 12 min read


Living and Learning: Strategies for High School Students with NF
Navigating high school is a unique journey for every student, filled with learning, growth, friendship, and, at times, challenges. For...
Shruti S
Nov 30, 20244 min read


Beyond the Diagnosis: Priotitizing Mental Health with NF
In today's world, mental health is at the forefront of personal and professional conversations, and yet it remains one of the most...
Shruti S
Nov 10, 20245 min read


My Life with Neurofibromatosis (Neuro-huh?)
Yes, you read that last word right. Neuro-fibro-matosis, shortened to NF for the sake of all of our tongues, is an often genetic...
Shruti S
Jul 21, 20243 min read
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